At Least I Am Free


Over and over I have said that what I am doing is not easy.  It is the hardest path I have chosen in my life, and every day is tremendous work, start to finish.  Some days my impression is that very few people understand what that means .  Hard paths are the best and most rewarding ones in life.

From childhood I have been an individual of deep thought and emotion.  There are things with which I connect in ways that I cannot put into adequate words.  Most of these are found in nature, whether it is adventure or beauty, and if the two are combined then all the better.  It has never been in my nature to just disconnect from emotions, however I did determine a long time ago that if I do not do the work necessary to manage it, then it will be my undoing.  There are times when that does not set well with others, and they do not understand why I am not being soft and sympathetic.  They may think I am being cold when in reality I could be raging inside, usually because I want to scream for them to do something proactive to rescue themselves.  Do you really not think I have been in your shoes?  My case of Lupus might look mild to anyone just meeting me today (or anyone not paying attention).  My true friends that have been there from day one, and made themselves trustworthy for my confidences, can tell you otherwise.  I can accurately say that NONE of you were there when I couldn’t even stand up off the floor for months on end.  That was before the support groups entirely.  I went through that alone.  It is part of what has made me the individual that I am today.  Where do you think I built my foundation?  At rock bottom, baby.

That ugly place I left behind.. the one full of agony, Vicodin, muscle relaxers, and despair… it’s been behind me since 2007.  It was not however until two years ago that I really shook free of it and started to climb the rest of the way out.  I know people that have never hit their rock bottom (though they may believe they have), and I know people that hit it and set up camp, and I even know a few that like me they stopped halfway up the ladder to enjoy the moderate reprieve.  It’s still dark in there, and you don’t have to stick around.  I am speaking metaphorically and I do that a lot.  If it doesn’t apply to you, skip it. If your world is really dark.. then it probably applies.

Pain is inevitable.  Sooner or later it touches all of us.  Suffering is optional.  I am going to keep repeating it until someone else gets it – and then some more until someone else does.  If there are no military or good Veterans in your life, maybe you need to make friends with some.  You can learn a lot from them, and I guarantee they will loyally be there to help you through the lessons.  They’ve taken on the responsibility at it’s grittiest level to let themselves be torn down, rebuilt, molded, and perfected into beautiful strengths that only the most disciplined training can bring out of a human person.  Professional athletes have to call on the same internal fire, and chose to drive themselves to new achievement for the intangible rewards it brings.  We all have that choice, no matter what our level of capability is.  We just have to choose to tap into it.

I grew up hearing the irritating words “the truth hurts” far too often.  The philosophy was (I believe) abused.  The truth is that the truth HEALS.  It’s just that not everyone appreciates the mending process, and some are unwilling to accept that parts of it can be unpleasant, uncomfortable, distasteful, and even painful at times.  Look at surgery as an example.  Damage has to be inflicted in order to correct and repair, but it is sometimes necessary and when it is necessary then it is the right choice.  Maybe something needs to be surgically removed from your inner workings, metaphorically speaking.  When you hear a “cutting” truth, you react to it, and many chose to react negatively rather than to consider what is being presented.  I’m sorry but I don’t have any anesthetic to present people when I am sharing concepts, and while I can mince words by choice, I tend to believe that for some people it dulls the message too much.  Even in medical procedures, sometimes it just can’t be done that way.  If you’re asleep when this message hits you, you’re not going to hear it.  This is a wake-up call.

There is not a morning that I wake up and automatically want to get my shoes on and go for a jog.  I have to stretch and move slow, and consider the messages my body is sending me.  I have to converse with myself about what I want to do, what I am up to doing, what I need to push through, and what benefits and risks there are.  This is after four years of treatment, the latter two including a fitness routine, two major surgeries in the midst, and a complete dietary overhaul for the last year.  I will ALWAYS have to be circumspect with every move I make, every activity that I undertake, and every morsel that I consume.  I committed to it because I decided that my life and living it was important to me – that I did not want to spend it miserable.  This starts on the inside, dear ones.  It is a decision.  You cannot manifest a reality without first imagining it.  There are days when I want to roll over and cry and go back to sleep.  If I want the things that I desire to manifest, I do not have that luxury.  This is MY choice about my own life.

Where there seems to be a problem is the reaction others have to cutting truths.  If it’s not for you, then it’s not for you, but you don’t have to get upset about it in that case.  Something unimportant in your world is a thing that you can walk by without a thought.  If you reacted to it, maybe that’s what you need to be examining instead of getting upset at me or anyone else.  When I share what I am doing, it is because I love other people enough to not want them to unnecessarily suffer.  At no point have I presented anything as a cure-all for disease, but I do guarantee that you will see changes if you do the work.  If you’re not willing to do that, then just admit it and drive on brothers and sisters.  The hard fact is this… until you actually do what I have done, and make the sacrifices, the hard choices, discipline yourself, say no to “wants”, and stay consistent with it at length, then you cannot rightfully criticize those of us that are living proof of what can be done.  You can’t have it both ways.  Either admit you don’t want to do it, and accept where you are at, or make every effort that you can drag from the depths of your soul and give yourself a righteous voice with which to speak.   If there were no successes, I would not share suggestions.  I would not share the words of others that I admire, if I saw them to be hollow and unfounded.  It is a basic truth that we are all individuals, and a disease like Lupus affects us all differently, but it does not discount the basic truths of how the human body functions.  I promise you that 100% of the time how you treat your body will affect your outcome.  You may not think it is enough, or significant, but it is still the truth.  You are the one that decides whether it is worth the effort or not.  It’s up to you.

There are people that I find quite inspiring to watch.  Some of them are like me, and they have catastrophic illness to manage.  Others are disabled physically in an obvious way, either missing limbs or unable to use them.  Others still are amazingly fit and blessed, but they have been through horrific injuries that would make an ordinary person want to give up.  Virtually all have been told NOT to do things, or that they would not be able to anymore, and they chose not to accept that prognosis.  In the end, each of them has made the same choices that I did… that I continue to make.  Life.  Motion.  Desire.  Joy.  Passion.  Fire.  Get some.  Or don’t.  Just don’t get mad at those of us that do.  In embracing that you will be free.

It may be time soon for me to make a new video – one of me just talking to you about where I am at.  Sometimes that reaches people better than plain text.  You have not yet seen the changes that have taken place.  I am living proof of what can be done.  I am also completely sincere about wanting to help others.  Truth.

T

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About Tala

-Livestream Broadcaster - Active in Periscope & Busker -YouTube, Twitter, Instagram, & Facebook Pages www.talanoexcuses.live Advocacy for better quality of life with catastrophic illness & injury. Conditions I live with myself are my awareness platform: rheumatic autoimmune & neurological, women's heart disease Traditional First Nations (Native American) -Training: Tai Ch'i Chuan, medical terminology, cultural Medicine -Avid about hiking, camping, & outdoor adventure Special Interests: Natural health, everything from East Indian to East Carolina cuisine, 16th Century German fencing Favorite Travel Spots: Yosemite, Catalina Island, E. North Carolina, Northern CA redwoods/coastal rainforest ~I live as naturally as I can, stay on a whole foods diet (as in what I eat, not as in "a diet"), avoid as many synthetic meds as I can, and do not consume artificial sweeteners and most preservatives. If you're curious about why, see my posts.~ Periscope/Twitter ID: Tala_NoExcuses https://badges.wegohealth.com/ha-awards-2016.js?referrer=Owb2x2Nb8L81mhJHyfwGcg

Posted on June 7, 2014, in General Blather, I Am That Wolf, Things That Make You Go... AAAaaaauuuggghhh!!! and tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. 4 Comments.

  1. When I was in my twenties and invincible (as all 20-somethings are) my mother frustrated me to no end when she told me that it was my fault if my life was going a little wacky. That it was something I was doing! (emphasis on I)
    i hated that. Blame myself? Yuk. Heck no. My boyfriends weren’t serious because THEY had commitment issues, My career was moving too fast because THEY wanted more of me (for less money of course) I split up my college education over 5 different schools and universities because THEY didn’t have enough to offer. See a trend here?….I didn’t at the time. I just got mad because SHE was the problem. LOL
    She was right. She’s still right. Thanks Mom! (looking up).. It WAS something I was doing. Or not doing. Point is – It was all ME. As soon as I realized that everything that happens has ME in the equation … things started improving. It wasn’t an epiphany by any means. More of a slow process..OH-If I tie my shoes I won’t fall. If I STUDY I get better grades. LOL- I’m 52 yrs old & STILL learning that I have some control over what happens! Good and bad-we fortunately (and unfortunately) have both control and responsiblity over our own lives. Ex: I’m diabetic. If I eat sugar my blood glucose goes up. I get tired. I get cranky. I get sick. So I DON’T eat cake anymore. And guess what? I don’t get sick. What a concept!!!!! But hey-you’d be surprised at how hard that simple thing can be when you refuse to take responsibility for something.
    Thanks T-Your right about so much! And I’m glad and honored for every day I get to come along on the ride that is your “Phoenix”-your rise from the ashes (or the floor-literally) whatever the case might be! :D Love Ya~ Julie

    • I think the reason that you always have such good insight, and usually understand what I am getting at, is because you’re one of the few people I know that has learned to start taking personal responsibility for personal actions. Most people deflect out of habit, and it is a learned behavior. If they never make the choice to teach themselves to do otherwise, there they remain. Thank you, as always, for the support.

  2. Reblogged this on JuJu's LUPUS and commented:
    Another Inspiring Blog from Tala-and a quote from her that I consider to be her “mantra”- “Pain is inevitable. Sooner or later it touches all of us. Suffering is optional.”

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