You Were Fine a Minute Ago…
Rheumatic autoimmune disease in particular has a habit of presenting symptoms that are unpredictable. They can sneak up and take you to the ground unexpectedly, and mercilessly. (For some people that is quite literal, not just metaphorical.) I asked some of my friends for input on this because I’ve been mulling the topic over for a few days now, and I wanted to hear perspectives. I am (anonymously) including some excerpts from that conversation here. I hear them echoing my own experiences and frustrations.
The typical patient – anyone with Lupus, RA, Fibromyalgia, Lyme disease, Cushings, MS, Sickle Cell, Dysautonomia, Myofascial Pain, Chronic Fatigue, any Chronic pain… is always dealing with symptoms. The amount, degree, and intensity varies, but we are nearly always symptomatic. With a disease like Lupus, we don’t even have a true remission. We can achieve clinical quiescence but to be totally symptom-free is not really a…
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Posted on July 20, 2015, in General Blather, I Am That Wolf, Things That Make You Go... AAAaaaauuuggghhh!!!, Thriving With Lupus and tagged ankylosing spondylitis, Autoimmune, Autoimmune Disease, Autoimmunity, Cardiomyopathy, Celiac disease, CFS, Chronic Fatigue, Chronic Illness, Chronic Pain, Crohn's, dermatomyositis, Eating Healthy, EDS, Ehler's Danlos, fatigue, Fibromyalgia, Fibrositis, Fitness, Heart Disease, IBS, Lupus, Lupus Awareness, Lyme Disease, migraine, MS, Multiple Sclerosis, Myofascial Pain, Myositis, Pain Management, porphyria, Raynaud's Syndrome, Rheumatoid Arthritis, Scleroderma, Sjogren's, SLE, Support, Systemic Lupus, Tala Smith, trigeminal neuralgia. Bookmark the permalink. 1 Comment.
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