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You Were Fine a Minute Ago…


Tala's Tracks

Rheumatic autoimmune disease in particular has a habit of presenting symptoms that are unpredictable.  They can sneak up and take you to the ground unexpectedly, and mercilessly.  (For some people that is quite literal, not just metaphorical.)  I asked some of my friends for input on this because I’ve been mulling the topic over for a few days now, and I wanted to hear perspectives.  I am (anonymously) including some excerpts from that conversation here.  I hear them echoing my own experiences and frustrations.

The typical patient – anyone with Lupus, RA, Fibromyalgia, Lyme disease, Cushings, MS, Sickle Cell, Dysautonomia, Myofascial Pain, Chronic Fatigue, any Chronic pain… is always dealing with symptoms.  The amount, degree, and intensity varies, but we are nearly always symptomatic.  With a disease like Lupus, we don’t even have a true remission.  We can achieve clinical quiescence but to be totally symptom-free is not really a…

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I Am That Wolf – videos finished


I Am That Wolf

http://www.youtube.com/watch?v=s0MBLvJ0ERE&feature=plcp

“I Am That Wolf” project – introductions

http://www.youtube.com/watch?v=oIZ3lYgdR28&feature=plcp

This is an ongoing project, and there will be future videos.  This is the first production and it is intended to reach those with a new autoimmune diagnosis, or those seeking answers.  You are not alone, and your life is not over.  We are an adaptable people that are focused on survival and quality of life, not the negatives of this destructive and incurable disease.  Please feel free to share the links to these videos anywhere you can.

Tala

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